thank you all
Well Luke's appointment was sort of good news. He lets them do all the checks but then is fed up when they come to do the pressures. His consultant thinks last time was incorrect as nothing in Luke's actual eyes shows increased pressure. Pressing on the eye trying to get a reading and also stressing about it, does increase the pressure. Problem is Luke is seen by the minions before they bring in the big head honcho, who handles him well. So he said leave it 3 months continue with the new drops, then they will try again, they wont do anything except pressures and Luke will only see him and if that fails then it will have to be done under general anaesthetic. But at least they are thinking the pressure isn't sky high, which I have to say made no sense to me. His consultant always said signs of increased pressure are a bulging hard eye, pain, and failing vision. I can check all of those and although we cant do a standard eye test, we did cut Luke's finger nails, which are tiny, on a piece of kitchen towel and I asked him to pick them up and put them in the bin, and he found them all, so his vision looked fine to me. Slightly bizarre way of checking but sometimes you just have to find a way