Totally agree with you Shell.
From what I've seen on Twitter and Facebook, GOSH are taking a lot of abuse for this today. It appears that rent-a-mob have got involved and at one point were trying to organise a picket at the hospital, medical staff are being referred to as murderers who kill babies. Just appalling. Tom was in a SCBU when he was born and we've seen first hand just how much care, dedication and just how much hard work the staff put in to make sure that these poorly babies get the very best chance of life.
No one would want to be in the position his parents are in but he's never going to be cured, they could take him to America 100 times and he wouldn't get better. I think that the doctor over there even stated that he wasn't initially aware of how severely affected he was and therefore treatment would be of no benefit to him? I think that their desire to keep prolonging his life is just a bit...selfish