Not good News

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Re: Not good News

Postby Osc » 25 Feb 2021, 21:18

Oh Cruiser, I am beyond sorry and sad to see this awful news. Please take every bit of help that comes your way, and know that we are here to “listen” and offer support in any way we can. I just wish we could do more.
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Re: Not good News

Postby Gal2 » 25 Feb 2021, 22:56

Just catching up now but I’m so very sorry to hear this news Cruiser. Thoughts are with you both xxx
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Re: Not good News

Postby Ally » 26 Feb 2021, 06:19

So very sorry to hear this Cruiser. xx
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Re: Not good News

Postby debih » 26 Feb 2021, 08:21

So sorry to hear this Cruiser.


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Re: Not good News

Postby cruiser2 » 26 Feb 2021, 09:13

Thank you ll for your messages.

We have got a supply of energy drinks on prescription.
A nurse came yesterday evening and filled in a long form. She said we are now entitled to a full care package and will not have to pay.
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Re: Not good News

Postby Kaz » 26 Feb 2021, 09:23

Glad to hear a care plan is being put in place Cruiser. Look after yourself (((x)))
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Re: Not good News

Postby Workingman » 26 Feb 2021, 09:29

Only just seen this and and so sad for you Cruiser and Mrs C.

I can only reiterate what others have said. We are a community and are here for you if and whenever you need us. Good to hear about the care plan, please make the most of it and look after yourselves.
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Not good News

Postby debih » 26 Feb 2021, 09:30

That’s good news Cruiser, about the care package. Use the carers. If they offer to send them in say, four times a day take it - even if you only feel you need them twice a day. If you drop down from what they offer you it’s very hard to get more visits later should you need them. And remember the carers are there for you as well as Mrs E.

Did the nurse speak to you about palliative care? We have a fantastic hospice near us that also offer palliative care at home - they were an absolute god send for my mum when my dad was diagnosed. They were able to offer her practical and emotional care as well as giving my dad fantastic care.

The drinks will help as they’ll give her all the vitamins and nutrients she needs and hopefully some energy.

Is Mrs E able to swallow liquidised food? My dad was unable to really eat very much and couldn’t manage solids. He had a lot of soup, yogurts, chocolate mousse, rice pudding and his absolute favourite - rice pudding. My mum bought some really small Tupperware pots to put food in - he couldn’t manage a whole yogurt or Tim of soup/rice pudding so she’d split them into the tiny pots and he’d just have one when he felt like it.

Am thinking about you both xxxx


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Re: Not good News

Postby saundra » 26 Feb 2021, 09:33

Glad a care package is in place for you both look after your selves
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Re: Not good News

Postby meriad » 26 Feb 2021, 10:19

Cruiser, I am only just catching up on this and am so so very sorry. I can only echo what everyone else has said - take whatever care you can get and make sure you look after yourself as well as Mrs E.
Do you have any family and friends close by that you can just chat to / be with? We obviously are all here for you, but sometimes you need to see a person and have a hug

Sending so much love and hugs to you both x
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